We have not heard from the endocrinologist yet about Ernie's thyroid but did hear from the Medical Oncologist about his oral infection. When we were at Hopkins two weeks ago, they were not sure if he had oral thrush and/or some other infection. They do not like to guess, so they took some swabs. Today the doctor emailed to tell Ernie that he had....drum roll...a very rare infection. That is three rare diseases in three years. I told him if he was going to defy the odds, I wished he would do it via a lottery ticket instead. The Medical Oncologist is consulting with the head of Infectious Diseases to decide what course of treatment to follow.
In the meantime, my dad is failing so we are headed to Minnesota tomorrow. We have been concerned about an infection at the feeding tube site so we stopped in unannounced at Ernie's GI doc today and prevailed upon him to remove the tube. This way we don't have to travel with a lot of paraphernalia. We are both glad to be rid of it. It is one step closer to normalcy, something we are dearly hoping for in 2012.
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